World Thalassemia Day Event
The National Webinar
A national webinar on ‘Thalassemia: Prevention and Cure’ was organised by Let’s Help Someone in collaboration with Department of Home Science, Arya Mahila PG College, Varanasi on 10th May 2020. The Webinar was attended by 94 participants from across 8 states and has been highly appreciated by all. The speakers, Rohit Roy and Nikita Ajwani majorly informed the participants about Thalassemia, its symptoms, prevention, treatments, life of thalassemics and its effect on married life. Along with this, we had Dr. Lalit from Banaras Hindu University who discussed about Thalassemia and the Covid-19 scenario in Varanasi.
We thank our supporters, specially Dr. Deepika Baranwal Ma’am from AMPGC, Varanasi for helping us organize the event at such a large scale. Our heartiest gratitude to all the participants for attending the webinar and helping us spread the awareness on such critical yet unattended issue.
We are doing our part to to make a Thalassemia Free World. Are you?
Seminar+OPD Camp with Dr. V.K. Khanna.
“Raise the awareness and share your uniqueness to the world.”
For all the super s/heroes of Varanasi to be a strong hand in making a Thalassemia Free India, Let’s help some1 organised a seminar and an OPD camp for Thalassemia Patients on 14th April’19 at Hotel Landmark Varanasi. The luminaries for the event included Dr. V. K. Khanna, Co-Chairman, Department of Paediatrics, ICH, Sri Ganga Ram Hospital, Dr. Sanjeevani Khanna, Gynaecologist from New Delhi and Ms. Sangeeta Wadhwa Psychologist from Mumbai and our chairpersons Dr. Vineet Gupta, Professor, Paediatric Haematology in BHU, Varanasi, Prof. Vijay Tilak, Dr. Nilesh Kumar and Dr. Pankaj Kannauje as well from BHU. A very explanatory and knowledgeable presentation by Dr. V. K. Khanna followed by a motivational speech by Ms. Sangeeta Wadhwa, a 42 year old Thalassemic filled the atmosphere with awareness, joy and motivation. The patients raised their queries to our guests and chairpersons in the question-answer round and a healthy discussion came to an end after lunch followed by an OPD session with Dr. V. K. Khanna.
Birthday Celebration- Quarter 1!
Let’s Help Some1 again comes up with a boom for our kids’ Birthday Bang for January, February and March at Tripling Bistro. The evening was made a memorable one for the Bachha Party by having a common celebration that includes Cake Cutting with some amazing Dance, Music, Games and Gifts for sure. On the spot performance by our super enthusiastic birthday babies added to the evening and the on-demand songs by parents and our singing team made a perfect ending!!
Awareness at Vasant Kanya Mahavidyalaya
LHS on 1st February conducted an awareness programme in Vasant Kanya Mahavidyalay spreading out the word about Thalassemia among the young girls. We told them about the disease, the suffering it can cause to the families and the means of its prevention and cure. As serious as the disease is, all the students as well as the professors were very emotional and got an opportunity to empathize during the program. We concluded with an interactive quiz session which was both fun and educative. The program was conducted under the supervision of Ms. Nikita Ajwani, co-founder LHS. Our special thanks to Dr. Rachna Srivastav, Principal VKM, Dr. Bina Singh and Dr. Anshu for their support and encouragement.
Testing Camp for General Donors – Hyderabad
LHS conducted it’s second Stem Cell Registry drive in Google, Hyderabad in association with Stem Cell Registry India (SCRI), Banglore and DKMS Deutschland , Germany on 22nd & 23rd Nov’18. As many as 261 general donors pledged their stem cells to help any Thalassemia, Blood cancer or Aplasticanemia patients. Our greatest gratitude to Mrs. Shalini Gambhir and her team from SCRI for giving their precious time.
Thalassemia- Pain of a Mother!
THE FIRST STEP TOWARDS CHANGE IS AWARENESS. THE SECOND STEP IS ACCEPTANCE! To bring this change LHS worked with Arya Mahila PG College, Varanasi to conduct an awareness session for our future Mothers. It was 6th September’18, the ending of Nutrition Week in AMPG when LHS was invited to spread awareness about ‘Thalassemia- As a Pain of a Mother.’ It was an interactive session with projected presentation consisting movies, pictures and videos for better understanding and the session ended with a quiz where the winners were awarded an internship with LHS. The girls had great enthusiasm and understanding and the team out there was really supportive. We thank all you guys for being such a wonderful audience! Our gratitude to the entire faculty Dr. Manju, Prof. Richa, Prof. Rachna Dubey and specially Prof. Deepika for arranging the entire meet!
Thalassemia Educational Seminar – Hyderabad!
Let’s Help Some1 (LHS) organized an educational seminar in association with Thalassemia and Sickle Cell Society (TSCS), Hyderabad for all our patients and their parents as well in Hyderabad. One of the most renowned Haematologist and Haema-Oncologist of India and also the President of Mumbai Haematology Group and Head of Department at Bombay Hospital Institute of Medical Sciences, Mumbai , Dr. M.B. Agarwal Sir and Dr. (Mrs. ) Usha Agarwal Ma’am came all the way from Mumbai to take this seminar.
The event was graced by Mr. Pankaj Sethi, who added enthusiasm tot he event by sharing his life events with patients and motivating them to lead a healthy life.
An audience of around 130 people, including patients and parents attended this program. All these patients are part of Thalassemia and Sickle Cell Society, Hyderabad- the largest society for Thalassemia patients in India and one of the largest in the world. Board members of the society were also present for the event and were part of the panel discussion as well.
HLA Testing Camp- An array of Hope!
LHS conducted free HLA testing camps on 21st June’18 and 7th July’18 in Hyderabad and Lucknow respectively in collaboration with the Stem Cell Registry India(SCRI), Banglore and DKMS lab, Germany. In Google, Hyderabad it was a general donor drive where 55 google employees & 3 LHS volnteers pledged their stem cells and in Thalassemics India Society Lucknow 104 kids were tested.
We present our gratitiude to Mrs. Shalini Gambhir and her team from SCRI and the Thalassemic India Society Lucknow for their kind cooperation and support. A big credit goes to all our volunteers who held the event a success.
We hope a good number finds a bone marrow/stem cells match for their transplant!
Thalassemia Educational Seminar- Varanasi!
Let’s Help Some1 was honoured to have Dr. M.B. Agarwal who conducted a ‘Thalassemia Educational Seminar’ at Hotel Landmark, Varanasi on 13th of May. Dr. M. B. Agarwal is one of the most renowned hematologists both nationally and internationally. The bench of guests also consisted of Honorable Dr. Usha Agarwal, wife of Dr. M.B. Agarwal and a renowned pediatrician. Honorable Dr. V. P. Singh who is one the most renowned doctors in the City and practices in Varanasi, and also Mr. Gagandeep Singh Chandok, who himself is a 35-year old Thalassemia Major Patient.
The Seminar was kicked off by Mr. Gagandeep presenting a beautifully inspiring speech to both the patients and their parents.
After that, Dr. M. B. Agarwal gave an enlightening educational presentation on Thalassemia and also answered to all the queries of the patients and their parents. Patients and Parents actively participated in the Seminar and came up with lots of questions for the doctors.
Dr. M. B. Agarwal and Dr. Usha Agarwal also did OPD for the patients.
Blood Donation Camp:
Summers are the months when the blood banks go through blood scarcity mainly and to cover up these scarcity LHS along with Thalassemia and Sickle Cell Society (TSCS) organised a Blood Donation Camp on March 13th at Google, Hyderabad. A total of 337 units of blood were donated for the thalassemia sufferers.
Thanking Rajanikar Kumar for being a strong support and conducting the event successfully.
DONATE BLOOD & SAVE LIVES.